The Cardiff Rare Disease Showcase

4 May 2017

The Cardiff Rare Disease Showcase
Thursday 4th May 2017, 18:30 – 21:00
Life Sciences Hub Wales, The Chris McGuigan Hub, Cardiff Bay, CF10 4PL

Findacure is pleased to announce The Cardiff Rare Disease Showcase!

Given the barriers that rare disease patients often face in getting the support and treatments they need, we believe that collaboration between all stakeholders is the only way the rare disease community can progress and meet its goals. To this end, we are holding our next Rare Disease Showcase event in Cardiff, Wales.

Taking place at The Life Sciences Hub in Cardiff Bay, our networking event will include cases studies from the ED Society and Tuberous Sclerosis researchers, alongside a selection of five minute lightning talks, proposed by delegates. The evening will be supplemented by canapés and refreshments to create an informal atmosphere and promote open conversation.

If you would like to present at The Cardiff Rare Disease Showcase, please note your interest upon registration and submit a short summary by April 21st. We will be in touch with those selected on Monday 24th April.

If you have any questions about the event, please email
Mary Rose Roberts at

Provisional Programme

  • 18:00 Registration
  • 18:30 Dr Rick Thompson, Head of Research, Findacure
    Welcome and introduction to FindacureFrom this point onwards, canapés and refreshments will be served. The event will consist of open networking accompanied by four delegate proposed lightning talks, each lasting five minutes, and two fifteen minute long invited case studies.
  • 19:00 Lightning talk 1
  • 19:20 Diana Perry, Chief Executive, ED Society
    Case Study: ED Society
  • 19:50 Lightning talk 2
  • 19:55 Lightning talk 3
  • 20:15 Prof. Julian Sampson, Director, Division of Cancer & Genetics, Cardiff University
    Case Study: Tuberous Sclerosis researchers
  • 20:45 Lightning talk 4
  • 21:00 Close

Reserve your place here.